Showing posts with label stigma. Show all posts
Showing posts with label stigma. Show all posts

Monday, June 30, 2014

Reflecting on a Post about "The Monster"

I read a blog post the other day criticizing a couple of musicians and the lyrics of a song they perform together. It struck a chord in me. Maybe it was a nerve that got hit. Either way, her post has been rolling around in my head for a few days. It's called "Don't Sing About Mental Illness" and it was written by a blogger named Maddy. The entire blog post can be found at http://chattymaddyhealth.blogspot.com/2014/06/dont-sing-about-mental-illness.html. She focuses specifically on "The Monster" rapped/sung by Eminem and Rihanna.

If you've never heard it, here's a link to the video. Warning: he uses some foul language.



This next video shows the lyrics as the song is being performed. It only shows lyrics and the explicit language is still there.



One part of Maddy's post discusses the chorus.


I'm friends with the monster that's under my bed
Get along with the voices inside of my head
You're trying to save me, stop holding your breath
And you think I'm crazy, yeah, you think I'm crazy
That's nothing
She writes,
First of all, "voices inside of your head" is a sign of psychosis, which is associated with schizophrenia and bipolar I disorder. As someone who has experienced voices in her head and knows how terrifying it is, I can assure you, you don't want to be "friends" with them. It's an experience that will leave you shaken and confused. 

I appreciate what Maddy is saying here and Maddy, if you're reading this, thank you for being so honest and sharing this part of your experience. She's right. Auditory and visual hallucinations are not necessarily the greatest experiences in the world and they are certainly symptoms of a number of serious mental disorders that need to be addressed. I've flown from my own dark bedroom to a fully lit kitchen or living room more than once because of such experiences. They are just part of my condition, my illness, and I've had no choice but to accept them into my life. They are a few of the many monsters, demons, issues, problems, beasts, symptoms, creatures, whatever you want to call them that hide in my surroundings. None of them are friends in the sense of "Hey, wanna go to a movie? We can share a popcorn." They are, however, friends in the sarcastic sense of being an undesired familiar thing like the heartache that comes to visit after a relationship ends. Saying two people are friends also means they accept each other and they've established a relationship that allows them to move on with some grace and dignity - most of the time at least. The beasts that wander through my life fall into that category. We are companions but not buddies. I'm not always thrilled that they travel with me but I've had to make friends with them in so far as being able to play nicely together.

She goes on to say,
Some people say the line isn't literal, but instead referring to self talk. I still have a problem with this because those aren't voices in your head. That's YOU speaking to YOURSELF. You shouldn't try to refer to a mental illness to describe something that is in fact NOT a mental illness.
That's an important distinction to make and most people don't (in my experience anyway). Lumping auditory hallucinations and self talk together undermines the significance of having hallucinations. I can't help but wonder how many people, trying to deny that they are sick, have avoided getting help by calling the voices self talk.

Regarding the line "And you think I'm crazy, yeah you think I'm crazy, that's nothing" she writes,
People are desperately trying to remove the stigma that surrounds mental illness. One of the most painful words you can say to someone who is struggling with one of these disorders is that they are "crazy". It's hurtful. Period. And again, since Eminem and Rihanna are both people who have experienced this, they should understand more than most of the population that this word can cut deep. So why are they referring to themselves as this?
I've already expressed my feelings on the use of the word "crazy" in a previous post: Go Ahead. Call Me Crazy.

When it comes to the last two words in the chorus, "is nothing," the blogger says,
They are implying that "crazy" doesn't even begin to cover what kind of emotional state they are in. Again, why? They are further stigmatizing mental disorders and painting us in a horrible light.

I don't understand this critique. I don't see how this final piece of the chorus is stigmatizing. Why would it be wrong for me to tell someone they have no clue how I feel? I don't see that as stigmatizing but rather revealing, almost educating. Conveying intensity of feelings opens people's eyes to the broad spectrum of human emotion and human beings are capable of higher highs and lower lows than most people will ever experience first hand. That's important to understand. That's why "pick yourself up by your bootstraps" is sufficient advice for some and impossible for others. I need to be able to tell someone that how they are describing my emotional state is correct but woefully inadequate. It's the difference between bumping your head against the back of the sofa when you plop down too hard and getting a concussion after falling down the stairs.

One final quote from Maddy,
Music is powerful. It should be a tool that is used to help those who suffer from mental illness. ...[W]e need to spread awareness that Eminem and Rihanna's song "The Monster" is NOT okay.
I agree 100% that music is powerful and it can be used to help people deal with their mental illness. It's a valuable strategy to consider including in our individual mental illness toolboxes. Should all music help people who have mental illnesses? Absolutely not. Creating music isn't about helping others, it's about expressing ourselves. It's a form of sharing and it helps us when it resonates with our own lived experiences. "The Monster" resonated with me. It's not a pretty picture but I connected with it. 

A couple final notes.

While reflecting on Maddy's post and the song, I came across a website that I found to be interesting and informative. You might like it. When you click a line in the song, a short commentary about that line shows up in the panel to the right.

and

I've never been a fan of rap music. It's not my thing. Grappling with this song, though, I must admit that it is poetry - something I never thought I would say.

Friday, June 27, 2014

Go Ahead. Call Me Crazy.

I am a middle class woman with a middle class job holding onto a middle class life. My money and my time are limited. I need to thoughtfully decide how to use those resources and be intentional about when and where I engage the larger community in a conversation about mental illness and stigma.

Stigma is definitely a problem, one that is well known among people with mental illnesses. We, meaning me, worry about the consequences of the wrong people finding out about our, meaning my, diagnosis. Whether it's fair or not is irrelevant when the job, custody, or respect of peers has been lost. The damage is done and it can't be undone.

Patsy Cline singing "Crazy" written by Willie Nelson

Stigma must be addressed. People must be educated. I get that and I agree whole-heartedly. How to address it, though, that's the million dollar question.

Recently, I've come across a number of blogs and facebook posts that focus on the use of the word "crazy" and, invariably, the writers are upset about it and are insisting that it should be removed entirely from our language. They are vehement about it, almost as if they were fighting against using words like "nigger" or "retard." I mean no disrespect by writing those words here. I would never use either of them to describe anyone. I'm only making the point that those two words are exponentially more offensive and hurtful than the word "crazy." "Crazy" isn't even in the same league.

Unlike the other two words, "crazy" has a lot of nuances, meanings, and connotations. The derogatory interpretation is just one of many. The word isn't the problem so much as the context. Who is saying it? And why? I don't care if my sister is calling me crazy as a synonym for being goofy or if my best friend says I'm crazy because I did something that she can't imagine doing herself. I see no harm in saying things like "I'm crazy in love" or "crazy about going to the concert." Patsy Cline does not offend me with her song titled "Crazy." It's actually one of my favorite songs of all time.

Just to be clear, certain uses of the word "crazy" cut to the bone. Those five little letters have been thrown at me a time or two (or more) by loved ones who were angry with me. It makes a great little jab when disagreements turn ugly. Saying I'm bleeping crazy as a synonym for demented, psychotic, or delusional can bring me to tears, especially if it comes from someone who knows about my mental health battle. Most of the time, though, it's just not a big deal. I'm actually more offended by being called "sweetie" or "hun" (short for "honey" in the south).

I'm sure it feels like I've gone off on a tangent in this post but I haven't. Returning to the fact that I'm middle class with limited resources, I must ask myself if I really want to spend my time fighting against the word "crazy."

Sunday, June 22, 2014

You Understand? Really?

My friend expressed some concern about me not long ago. She is a newish friend and does not yet know much about having a bipolar brain. She knows even less about my particular brain and the life experiences it initiated and stored in its memory.

"You're not quite yourself today. Is everything okay?"

"Yeah. I'm just in a funky place right now."

It's a good answer. Most people accept it easily and we move on. More importantly, I avoid thinking at a level which would prompt tears or temper. My friend, however, didn't like it. She pressed the issue. I don't remember the exact string of questions or my answers but I kept trying to politely and nonchalantly redirect the conversation. The only way to make her interrogation stop was to be direct and probably rude.

"Look, there's nothing wrong in the world around me. My bipolar head is just screwing with me. It's illogical, it happens, and I'll be fine."

What else could I possibly say? The 15 minutes we had together before going to work was not enough time to explain the meaningless anxiety churning in my gut or the darkness I was walking into. I didn't really want to explain anyway. I wasn't ready to share the very personal, raw details she was trying to elicit and her aggressive, albeit well-intended, poking for information has made me less inclined to share in the future.

Then she said, "I understand." The conversation could have, should have, ended there but I laughed and shook my head. It was a knee-jerk reaction and it was stupid.

We pulled into the parking lot at work. "Really. I understand."

Northern Goshawk
My mind commenced to spinning as a result of her audacity. Thoughts. Feelings. Images of "understanding" eyes full of pity. Memories of "understanding" voices telling me to suck it up. It all moved through me so fast that the only knee-jerk reaction I had was stunned silence and the inability to move. Long moments passed.

I scoffed and stepped out of the car. As we walked into the building we work in she continued looking at me. Her eyes oozed just how pathetic I was to her. She looked at me like I was a sad, little, wounded sparrow even though I felt much more like a Goshawk whose territory had just been invaded.

Those not initiated into the pain, euphoria, confusion, and chaos that bipolar disorder gifts to the fortunate sick and the people who love them do not understand.

Sunday, August 4, 2013

Normal or Nuts? Or Angry!


Dr. Phil.
Then Brian Williams.
Now Dr. Oz.

I struggle against stigma. I fight it, one way or another, every day. These guys sure are making it difficult!

Wednesday, May 22, 2013

Blog for Mental Health


I pledge my commitment to the Blog For Mental Health 2013 Project.

I will blog about mental health topics not only for myself, but for others.


By displaying this badge, I show my pride, dedication, and acceptance for mental health.


I use this to promote mental health education in the struggle to erase stigma.
D.J. Haswell, blogging A Midlife Adventurepledged me. It's a fantastic blog. Thoughtful. Honest. Touching. Most importantly perhaps, it's helpful. D.J. gives me one more reminder that I am not alone.
Hind sight is 20/20. I think the short version of my story is best told backwards. My first, almost brave steps, came when I met D (for the sake of anonymity). This was the first person I ever met that was bold and outspoken about having a mental illness. Honest and upfront about having bipolar disorder, D opened a small box of courage inside me. I felt like I could finally admit to myself that something was wrong inside me.

Even so, I didn't seek professional help. The risk was too great. If the wrong people found out, all the therapy and medication in the world wouldn't be able to put my life back together again.

Ultimately, someone near and dear to me hijacked me. Under the guise of meeting my new general physician, I was driven to the doctor to get help. I was angry at being set up like that. It was a short-lived emotion, though. Talking to my gp about what was going on and how I was feeling, a strange kind of relief washed over me. The air around me didn't press down on my shoulders and back quite so hard.

After ten years of manic anxiety that made my skin hurt when someone touched me... ten years of nothingness depression that made me sink to the floor in uncontrollable tears... elation... rage... desperation... and everything mixed together.

Like so many others, my story is much longer than this. The point right now is not to write an autobiography or memoir. The point is, while my fears were real and I was taking a genuine risk, the improvements in my life are almost surreal. I have a shot at a real life. Finally.

I could not have done this on my own. It sounds cliche, but its true. D stepped up. I must respect that and step up, too. How many countless others only need to see someone, like D, like me, stand up?

I am pledging five of my fellow bloggers who have stood with me, and have proven their mettle in my eyes as mental health bloggers.
  1. Hope for Life
  2. Aaron's Journey For Mental Health
  3. Anxiety in General
  4. Laugh Now, Cry Later
  5. Haru Haru
  6. If you happen upon this without being pledged, I pledge you, too.  Feel free to take the pledge!  Promote awareness!

If you take the pledge please take the following steps....

1.) Take the pledge by copying and pasting the following into a post featuring “Blog for Mental Health 2013″.
I pledge my commitment to the Blog For Mental Health 2013 Project.  I will blog about mental health topics not only for myself, but for others.  By displaying this badge, I show my pride, dedication, and acceptance for mental health.  I use this to promote mental health education in the struggle to erase stigma.
2.) Link back to the person who pledged you.
That's me.
3.) Write a short biography of your mental health, and what this means to you.
4.) Pledge five others, and be sure to let them know!
5.) And, as something novel for 2013, Lulu and I [at Canvas] ask one more thing of you.
To introduce Blog For Mental Health 2013, and really build a sense of community — and show everyone how many of us there are, and how strong we are, coming together — we are launching a Blog For Mental Health 2013 Official Blogroll!  So, in addition to linking back to the person who pledged you, please include the link to this original post in your piece.  As this gets passed along, click here and leave a comment containing the link to your pledge, and we will put you on our Blog For Mental Health 2013 Official Blogroll page!


Show the world our
strength,

show them our
solidarity,

show them
what we are made of.



Take the Blog for Mental Health pledge and
proudly display the badge on your blog!
And may we all have a happy, healthy 2013!

Wednesday, May 1, 2013

I Love Photoshop.

I think the title says it all. Well, most of it. The picture below says the rest of it.
Please support me and NAMI by making a donation at http://namiwalks.nami.org/Jennifer.
Jennifer Clark (c) April 28, 2013

Monday, April 29, 2013

Y is for You

The photo was taken by my cousin Amy. I made the modifications by playing with Photoshop.

NAMIWalks take place all over the country. To find one near you go to http://namiwalks.org/

Friday, April 26, 2013

W is for Walk... NAMIWalk that is!

Time for the Walk.... the Austin NAMIWalk that is.

Shamelessly, I ask you to support me and NAMI by making a donation at http://namiwalks.nami.org/Jennifer.

The Austin NAMIWalk is a 5K walk that starts at West Riverside Drive at South 1st Street, Austin, Texas. It takes place on September 28, 2013 and people start walking at 9:00am (check-in is at 7:30am).

The walk taking place in Austin is only 1 of many taking place around the country at different times of the year. It's held annually for two big reasons:

  1. to increase public awareness of mental illness
  2. to raise money so NAMI Austin can fund the support, education, and advocacy programs offered (for free) in our community.
The view from the starting location of the Austin NAMIWalk

Monday, April 22, 2013

S is for Save the Date


Directly from the NAMI Austin NAMIWalks Website:
SAVE THE DATE for the 2013 NAMI Austin Walk:
Saturday, September 28, 2013
The Austin Walk is part of a nationwide program sponsored by the National Alliance on Mental Illness (NAMI) that has two primary goals:
  1. To increase public awareness about mental illness and the devastating effects that it has on the lives of millions of Americans – one in five families – every year.
  2. To raise much needed dollars to help fund the wide array of NAMI support, education, and advocacy programs here in our community.
2012′s Austin Walk was a huge success with more than 2,000 walkers participating and a record-setting $258,000 raised for NAMI’s programs. Get ready for 2013 to:
  • Recruit your family and friends.
  • Rally your co-workers.
  • Call on your communities.
  • We can all help raise community awareness … one step at a time.

For more information about NAMIWalks Austin, please contact:
NAMI Austin Office: 512-420-9810
Email: namiwalks@namiaustin.org
To make a donation to NAMI Austin through me, go to the following website ...
Let's made stigma disappear!

Sunday, April 21, 2013

Lines for a Fortune Cookie for NaPoWriMo Day 21

The next time you feel down, someone will tell you to pick yourself back up and get over it.

You will "like" a Facebook page dedicated to mental illness advocacy and education.

Choose your words carefully. Stigma bites and it might come back and bite you.

An important message is waiting for you at http://www.bringchange2mind.org/

Someone close to you has a mental illness. They're just not saying so.

Stress is wearing you down. Slow down before you hurt yourself.

Talk to someone. You need to share and they need to hear.

Are you really OCD? Or do you just like saying that?

You will soon meet someone with depression.

Participate in your local NAMIWalk.

Sing. It's good for you.

Recovery is possible.

Are you crazy?

Meditate.

Just breathe.

Take one step at a time.

Your insurance will cover it.

Imagine your world if she wasn't sick.

Try listening to understand rather than to respond.

Good things will come to you if you follow this blog. ;)

You are the 1 in the 1 in 10 that will experience depression.

Your bad attitude is the reason people with mental illnesses don't seek help.

Every criminal is not mentally ill and every mentally ill person is not a criminal.

Suicide is not funny. Tell that to the next person you hear make a joke about it.

Remember to tell them you love them. Every day.


Saturday, April 13, 2013

L is for Love those Pets

I can't help myself. The pets that walked with us in last year's NAMIWalk were fantastic. Besides, it's a good excuse for me to work on my tech-savvy skills.




Thursday, April 11, 2013

J is for Jams

Photos taken by my cousin Amy (c) 2012
Before the NAMIWalk started last year, NAMI Austin pulled together a lot of wonderful things to entertain us in the morning while everyone was checking in and getting ready.

The morning was amazing! In addition to live music, we had a warm-up station where an instructor was leading people through stretches in preparation for the walk.

The 4-H Club put together a little pet place with water bowls arranged in a circle for all the furry walkers. They placed it too close to the stage, though. The loud volume scared some of the pets. I'm guessing they will put the pet station in a different location this year.

Scattered across the gathering place were beverage stations - coffee, orange juice, water. Other stations were providing small snacks, like granola bars, and bottled water. People were even doing face painting! NAMI Austin knows what it's doing.

Me? Not so much. It was my first year as team captain and I fumbled quite a few things. My team, for example, didn't have matching shirts like most of the other teams. The team captain before me provided everyone with bright, colorful leis and I forgot to do that. My team members asked for them, expecting them, and I didn't have any. Getting leis is on my to do list this year. Matching t-shirts is on my list, too.

I'm really excited about this. Can you tell?





Wednesday, April 10, 2013

I is for Incensed

I cannot tell you how appalled I am at this ad. Mocking people in the throes of desperation? Formatted to look like a hotline service announcement, the ad company even included a 1-800 number. This is cruel. Can you imagine if someone actually used that number in a cry for help?

Source: http://www.brandchannel.com/home/post/2013/04/11/McDonalds-Mental-Health-Ad-041113.aspx